Friday, October 6, 2023 from 3:00 PM to 6:00 PM

at Washington University School of Medicine

Options to attend in-person or virtually


Register Here


2023 Speakers

Multidisciplinary Care for Rett and Rett-related disorders: The Rocky Mountain Way

Timothy Benke, MD, PhD
Professor of Pharmacology
University of Colorado Medical School

Finding Caregiver Wellness Through Community, Support, and Joy 

Genny Jessee
Fellow Parent; Director
June Jessee Memorial Foundation

Demystifying G-Tube Use in Rett Spectrum;
Family Panel Discussion

Amy Fox, BSN, RN
Clinical Nurse Coordinator
WUSTL School of Medicine

Update on FDA approval for Trofinetide in Rett Syndrome

Robin Ryther, MD, PhD
Associate Professor Neurology
Director, Rett Spectrum Clinic
WUSTL School of Medicine


This event is sponsored by