Rett Spectrum Conference Series 

2nd Annual Family Education Symposium


Friday, April 12, 2019

3:00 – 6:15 PM

(Registration opens at 2:30)

Eric P. Newman Education Center, Great Rooms A/B

320 S. Euclid, St. Louis, MO 63110

Reception Immediately Following


 Nutrition and GI Concerns in
Patients with Rett Syndrome and
Related Disorders Including
CDKL5, FOXG1, and MECP2 Duplication

Nutrition Answers in
Rett Syndrome Care 
   

Kathleen J. Motil, MD, PhD

Professor, Department of Pediatrics,
Section of Pediatric Gastroenterology,
Hepatology, and Nutrition
Baylor College of Medicine 
Suzanne P. Geerts, MS, RD, LD
Clinical Assistant Professor,
Department of Nutrition Sciences
University of Alabama-Birmingham 

 

 Update on clinical trials and
Rettsyndrome.org sponsored research

 Genes and Syndromes Seen
in the Rett Spectrum Clinic





Steven Kaminsky, PhD

Chief Scientific Officer
Rettsyndrome.org

Judith L. Weisenberg, MD

Associate Professor, Neurology
Washington University School of Medicine



This FREE event is open to the public, but please register so we can ensure an adequate count for the reception.


 


Eric P. Newman Education Center (EPNEC) 

320 S. Euclid, 

St. Louis, MO 63110
(Google Maps Link)


Great Room A/B is located on the first floor.


Directions to EPNEC and Parking Map are available here.


Free parking is available in the MetroLink Garage (Google Maps Link).  Take a ticket upon entry, and be sure to pick up a validation pass at the registration table.


Connect with other families


Informal family gatherings are being planned for Friday lunch and Saturday morning.  For more information, contact Joyce Opinsky at jopinsky@gmail.com or visit the Facebook event page.


Coming from out of town?


St. Louis Children's Hospital provides a hotel guide with recommended accommodations for patients and families.



 

While this event is completely free to the public, if you are interested in making a donation to support future events through the Rett Spectrum Clinic at Washington University, you can do by donating through www.stlouischildrens.org/donate.  When making your gift, under "Please direct my gift to" select "other" and type in "Rett Spectrum Clinic."